Neuro-developmental disorders NDD

Suffering in the shadows

Parents of medically complex children say life is a never-ending fight for help. Jordan Stead’s three-year-old daughter, Ebba, has a rare neurodevelopmental condition called CDKL5. Mark Cumby CBC. By Jessica Singer, CBC News June 3, … READ MORE

Toddlers with developmental delays are missing out on help they need. It can hurt them long term

Alexander, 3, who is being treated for developmental delays, watches Paw Patrol as one of his dinosaur toys lays nearby in the living room of his West Chicago, Ill., home Tuesday, Aug. 8, 2023. Alexander qualified for five Early … READ MORE

Montréal doctors’ breakthrough discovery about causes of cerebral palsy giving hope

Sienna Zakaria was born with cerebral palsy and a new breakthrough discovery about the causes of the disorder is giving her parents new new hope. CTV Montréal Matt Gilmour Video journalist, CTV News Montréal March 29, 2024 A … READ MORE

Study supports genetic testing for people with cerebral palsy

A Geisinger meta-analysis of recent research on the genetics of cerebral palsy (CP) provides evidence that genetic testing should be offered as the standard of care for people with the disorder, similar to current recommendations for … READ MORE