Pediatrics

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Concerns raised over support backlog for children with disabilities

Families and advocates of children with disabilities are concerned about backlogs in the system leaving some without support. Credit: Juan Pablo, Pexels. Alesia Fieldberg, CTV News Calgary September 6, 2024 Some people trying to … READ MORE

Small steps, big dreams: Calgary family raises money for walker

Jaxson and Joseph trying out the Trexo Walker at the Alberta Children’s Hospital. Jeryn Edwards/Supplied By Joelle Tomlinson, Global News March 1, 2024 Jeryn Edwards’ sons Jaxson and Joseph are happy, playful and full of life. As … READ MORE

The daunting child care challenges for kids with special needs

Finding high-quality, affordable child care can be especially difficult for parents of children with disabilities. File photo, John Kuntz, cleveland.com By Gretchen Cuda Kroen, cleveland.com January 3, 2024 Cleveland, Ohio — Finding … READ MORE

Suffering in the shadows

Parents of medically complex children say life is a never-ending fight for help. Jordan Stead’s three-year-old daughter, Ebba, has a rare neurodevelopmental condition called CDKL5. Mark Cumby CBC. By Jessica Singer, CBC News June 3, … READ MORE

Babies as young as four months show signs of self-awareness – study

Baby wearing EEG cap for the study. Pictured with parent. University of Birmingham. Eleanor Hail, University of Birmingham 21 November 2023 Babies as young as four months old can make sense of how their bodies interact with the space … READ MORE

Should you have a copy of your medical record? These experts say yes

Experts say patients will feel more informed, empowered in their care. Experts say patients should have a copy of their medical records, but they acknowledge there are still many barriers to getting this information into the hands of … READ MORE

Toddlers with developmental delays are missing out on help they need. It can hurt them long term

Alexander, 3, who is being treated for developmental delays, watches Paw Patrol as one of his dinosaur toys lays nearby in the living room of his West Chicago, Ill., home Tuesday, Aug. 8, 2023. Alexander qualified for five Early … READ MORE

How families of children with disabilities can find support

Susana Ruiz sat in the doctor’s exam room in San Jose, unable to smile, open her right eye, or even take a sip of water. Susana Ruiz with her youngest son. Photo by Manuel Ruiz. By Claudia Boyd-Barrett, California Health Report … READ MORE

Biomedical engineering students create child-size wheelchairs

Even with a pediatric wheelchair, learning how to get around on wheels can be challenging for a child, especially one with cerebral palsy, spina bifida or a limb deficiency. Tulane biomedical engineering students, professors and … READ MORE

WHO launches first ever Patient Safety Rights Charter

WHO / Jacqueline Christensen. World Health Organization 18 April 2024 Today, WHO launched a Patient Safety Rights Charter at the Global Ministerial Summit on Patient Safety. It is the first Charter to outline patients’ rights in the … READ MORE

Montréal doctors’ breakthrough discovery about causes of cerebral palsy giving hope

Sienna Zakaria was born with cerebral palsy and a new breakthrough discovery about the causes of the disorder is giving her parents new new hope. CTV Montréal Matt Gilmour Video journalist, CTV News Montréal March 29, 2024 A … READ MORE

Cardiopulmonary function in adolescent patients with pectus excavatum or carinatum

3D chest wall scan. Schulich School of Engineering, University of Calgary. Abstract Background Pectus excavatum (PE) and pectus carinatum (PC) have generally been considered an aesthetic issue, although there is growing evidence of … READ MORE

Canadian kids’ spinal surgery waits ‘far exceed’ recommendations: report

Severe spinal curvature painful, delays can lead to more complex surgeries with longer hospitalizations. Madison West-Pettigrew smiles in this undated photo. Madison waited a year for scoliosis surgery as the curvature in her spine … READ MORE

Therapy framework reveals promise for intensive pediatric rehabilitation for children with motor disabilities

A Fralin Biomedical Research Institute study in Behavioral Sciences highlights effective therapeutic interactions and improved outcomes for children with motor disabilities. Dory Wallace, a therapist at the Fralin Medical Research … READ MORE

Effectiveness of cranial remolding orthoses for the treatment of deformational brachycephaly

3D Scanning for Plagiocephaly Helmet Therapy. OAPL Australia. Abstract Introduction This retrospective chart review aims to analyze the effects of initial severity and age on cranial remolding orthosis (CRO) treatment of deformational … READ MORE

Marching in with great news!

Ready To Hit The Links? Registration is now open for single players and foursomes – click here to register. We urge you to take advantage of our Early Bird Registration pricing available until April 30th. We are also in the … READ MORE

Principles of Ankle-Foot Orthosis Prescription in Ambulatory Bilateral Cerebral Palsy

Brittany, a patient at Shriners Hospital for Children—Chicago rides an adaptive bike with a recreation therapist. Shriners Hospital for Children, Chicago photo. Abstract Maintenance of upright posture and gait mobility is frequently … READ MORE

Got a Bugaboo stroller? Health Canada is recalling these seats

A recall has been issued for several Bugaboo Dragonfly Stroller seats because they may pose an injury risk to children. Photo courtesy: Health Canada By Saba Aziz, Global News December 8, 2023 Health Canada is recalling dozens of … READ MORE

Learn about Pectus

ACPOC 2024 Annual Meeting OTWorld 2024 April 24–27, 2024 Grand Hyatt Denver, Colorado Early Bird Registration ends February 23rd 14-17 May 2024 Medical & Pharma Medical Equipment Leipzig, Germany 24th Annual Congress: Chest Wall … READ MORE

10-year study shows brace treatment is best for Pectus carinatum

Surgery was the top treatment choice for pectus carinatum, but a long-running study indicates that using a brace is the choice for better outcomes. The Calgary Protocol: bracing for Pectus carinatum Marian Freedman, Jon Matthew Farber … READ MORE

What to know about bracing for Pectus carinatum

If your child has pectus carinatum, your doctor might recommend a chest brace to correct the pigeon-chested appearance that the condition causes. Chest braces can help to reshape your child’s chest, relieve any symptoms, and give … READ MORE

Chest wall bracing for children and young people with Pectus carinatum

This video is about Dynamic Bracing of Pectus Carinatum. Tomasz Bugajski March30 2017. UofC Kinesiology Seminar Series. Youtube Oct 1, 2019 Key findings. The evidence base for chest wall bracing in people with pectus carinatum … READ MORE

A pose-mapping technique could remotely evaluate patients with cerebral palsy

The machine-learning method works on most mobile devices and could be expanded to assess other motor disorders outside of the doctor’s office. MIT engineers developed a machine-learning system that remotely analyzes videos of people … READ MORE

UCalgary breaks new ground in transformative partnerships for child health

One Child Every Child harnesses research and innovation to tackle one of society’s biggest challenges. Dr. Susa Benseler speaks at a podium during the announcement of One Child Every Child. Riley Brandt Photo, University of Calgary … READ MORE

How to address the psychological impact of scoliosis bracing

Answering Common Questions About Scoliosis Bracing for Kids and Teens. Gillette Children’s, Foster Brennan. by Maria St. Louis-Sanchez, The O&P Edge May 1, 2023 ▽ Table of Contents Introduction The Benefits and Challenges … READ MORE

Study shows baby helmets yield high success rate

Many infants need cranial remolding orthoses to assist in reshaping their heads. Research shows they have a high success rate with infants. Jacob Dwyer, Michigan Medicine Valerie Goodwin, Michigan Medicine, University of Michigan … READ MORE

Health Canada warns that Rojada Child Safety Seats may pose a risk of injury

Health Canada Consumer product advisory. Last updated 2023-09-20 Summary Product: Rojada Child Safety Seats Issue: Consumer products – Injury hazard What to do: Immediately stop using the product and safely dispose of it in such … READ MORE

Canada first to develop medical standards to keep kids from suffering pain in silence

OTTAWA – The Health Standards Organization has released a new set of guidelines to help hospital workers manage children’s pain — particularly for those who can’t communicate when they’re hurt. An empty cot … READ MORE

New strategies needed to support parents of children with severe CP, study finds

Healthcare professionals should develop new strategies for helping to fulfill the now unmet needs of parents whose children have severe cerebral palsy, beginning with improving education about the disease and aiding them in getting … READ MORE

Nieman: Pediatrician prescribes self-compassion, kindness for parental guilt

At the start of my clinical practice in 1987, I had very little appreciation of the importance of parental guilt. Very few parents brought it up as a personal struggle. Over the past 36 years, I have observed a definite pattern of … READ MORE

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