Spina bifida

Finding shoes for kids with disabilities is hard. It shouldn’t be

Author Cassi Young’s son Luke can’t wear standard shoes because they don’t fit over his ankle-foot orthotic braces. Cassi Young photo My son, Luke, was born 18 months ago with myelomeningocele, the most severe form of spina … READ MORE

Meet the bike designer who changes lives

Custom bikes make cycling dreams come true. Jerzee Wasylnuk’s mobility was achieved thanks to Freedom Concepts, a Winnipeg company where a team custom designs and builds bikes for people — mostly children — who would never … READ MORE

7-year-old’s mystery illness baffles specialists

Gracie Lee Straus loves taking photographs of people and turning them into jigsaw puzzles on her iPad — from her friends and teachers to her doctors, nurses and therapists. She loves puzzles, even the old-fashioned, hands-on ones. … READ MORE

Just a really happy baby

Isaac Heroux and his mom Julia Heroux at Isaac’s Walk, the first Spina Bifida & Hydrocephalus Association of Ontario Spirit Wheel Walk Run at Lemoine’s Point Conservation Area in Kingston, Ont. on Sunday June 26, 2016. … READ MORE

A day in the life of four wheelers

Alex Ghenis, Paula Larson, Ian Jaquiss and Ellen Stohl are four very different people with disabilities — with one similarity in common: Each agreed to share a day of their lives, taking us on a tour of what do they do, where they … READ MORE

New phone app for patients with spina bifida

Use of the iMHere system in spina bifida is feasible and was associated with short term, self-reported improvements in self-management skill. This system holds promise for use in many diverse chronic care models to support and … READ MORE

Double bonus – AFOs improve dual-task gait in two ways

Ankle foot orthoses intervene at the level of the body and at the level of activity. But they might also have effects at the level of participation. – Nikta Pirouz CPO By Jordana Bieze Foster, Lower Extremity Review March 2015 … READ MORE

Pediatric Myelomeningocele Clinic, Alberta Children’s Hospital

Pediatric Myelomeningocele Clinic provides diagnosis, assessment, and treatment for children with spinal cord issues with bowel and bladder involvement. Alberta Children’s Hospital. Fresh Sugar Photography The clinic follows … READ MORE