Share your thoughts on research in cerebral palsy.
What do researchers need to know about living with CP? In conjunction with the NeuroDevNet Brain Development Conference 2016, the annual CP in Motion conference will include a patient and family engagement consultation and workshop.
|Family Participation and Exchange: An Ongoing Process and Priority|
|It is vitally important that families affected by neurodevelopmental disabilities are front and center in the research process about them. Families should have a voice in what and how research is done. In Canada, there is not yet a clear engagement strategy for Canadian families to become meaningfully involved in the research processes.
A series of exciting events at the 7th Annual Brain Development Conference in Calgary aim to start the conversation on how families want to become, and can become meaningfully engaged in the research process. Learning from the conversation at the conference, goals are to listen to what families have to say and build an extended family engagement strategy to guide NeuroDevNet.
|FREE Family Engagement Registration Form|
|Parents and families interested attending these events can attend for FREE. Additionally, upon signing-up, parents and families are also eligible to attend other session at any time during the conference from Sept 28th to October 1st|
NeuroDevNet is a cross-disability association of Canadian researchers seeking transformative advancement in developmental disabilities. Founded in 2009, our Network concentrates the expertise of 300 member investigators, collaborators and trainees on improving quality of life and outcomes for children with brain-based disabilities and their families.
We do this through research that pushes the capacity to diagnose brain-based disabilities earlier in children’s lives, and identifies treatments for core symptoms of individual disorders as well as cross-cutting neurodevelopmental issues. Beyond establishing an evidence base for what we do, NeuroDevNet is evaluating the cost-effectiveness of our contributions and the context into which they are introduced, with the aim of enabling children with brain-based disabilities to lead healthier lives, with social, economic and health benefits for all.
September 30, 2016 at Hotel Arts Calgary
To register and for more details, click here.
|Upcoming Events – Cerebral Palsy Association of Alberta|
Life Without Limits Challenge
CP in Motion Conference
World CP Day
With a tradition of alternating meetings between western and eastern Canada, we have chosen Calgary as the setting for our Seventh Annual Brain Development Conference. The city will also play host to our cerebral palsy research group’s annual event, CP in Motion, to be held for the first time this year in conjunction with the Network’s signature gathering of its members, stakeholders, and the community.
NeuroDevNet is a Canadian Network of Centres of Excellence (NCE) dedicated to the early diagnosis, prevention and treatment of neurodisabilities and support for families. Our vision is to improve outcomes through research that will significantly improve the lives of children with neurodisabilities—with social, economic and health benefits for all. We provide innovative training opportunities to seed a new generation of Canadian researchers committed to this cause.
NeuroDevNet maximizes the power of our investments in research and training through high impact projects that challenge and advance current understanding, and deliver results that matter. NeuroDevNet works to achieve this with partners that cross traditional boundaries between disciplines and sectors in academia, the community, industry and federal and provincial governments.