Primary Care and Rehab

Continuity of care

Increased lifespan of individuals living with cerebral palsy necessitates a broader perspective on care

A special issue of the Journal of Pediatric Rehabilitation Medicine covers underrepresented topics associated with cerebral palsy impacting children, adolescents, and adults. EurekAlert! AAAS 6 June 2024 Amsterdam, June 6, 2024 – … READ MORE

Children with special health needs are more likely to come from poorer neighbourhoods

Policymakers must ensure robust resources are in place where they are needed most. Unsplash CC0 Public Domain By Caroline Reid-Westoby and Magdalena Janus, The Conversation June 5, 2024 via Medical Xpress Children’s health depends … READ MORE

Kinesiologists could be part of solution for overwhelmed health-care system

Moncton professor says kinesiology grads ready and able to keep patients out of hospital. Natalie Arsenault says kinesiologists graduate with a degree that prepares them to help people prevent injuries, remain active and improve their … READ MORE

Alberta health-care workers say they’re demoralized, exhausted as patient surge looms this fall

AHS warns of ‘further capacity challenges,’ saying it’s taking steps to ensure patients get ‘care they need’ Health-care workers are being warned to prepare for an influx of patients during the coming … READ MORE

Expedium Orthopaedics

Alberta’s Premier Orthopaedic Care Center Rethinking the way healthcare is delivered in Alberta. One way to reduce the muscle tone is to inject botuline toxine, better known as botox, in the children’s muscles. This enables … READ MORE

Innovative primary care program blending virtual with in-person options connects locals to family physicians

Successful study highlights how integrated virtual care delivered primary care to rural and remote communities. Photo by Dominik Lange on Unsplash By Paul Logothetis, University of Ottawa April 18, 2024 An innovative health care … READ MORE

Concerns raised over support backlog for children with disabilities

Families and advocates of children with disabilities are concerned about backlogs in the system leaving some without support. Photo credit: Juan Pablo, Pexels. July 18, 2018 Alesia Fieldberg, CTV News Calgary September 6, 2024 Some … READ MORE

Small steps, big dreams: Calgary family raises money for walker

Jaxson and Joseph trying out the Trexo Walker at the Alberta Children’s Hospital. Jeryn Edwards/Supplied By Joelle Tomlinson, Global News March 1, 2024 Jeryn Edwards’ sons Jaxson and Joseph are happy, playful and full of life. As … READ MORE

Defining chronic pain for high-performance athletes with disabilities

UBCO study says customized training and recovery plans critical to success. Wheelchair racing, Paralympics. September 28, 2021. Credit: Pixabay/CC0 Public Domain University of British Columbia Okanagan, Patty Wellborn August 27, 2024 … READ MORE

Analysis identifies areas for improvement in the overall health of Canada’s population

Study involving Western professor shows rate of improvement for burden of disease in Canada has plateaued since 2011. Researchers found the improvement in overall health of Canadians has stalled and is trending downwards compared to … READ MORE

Movement is key to supporting adults with Down syndrome

UNLV professor Thessa Hilgenkamp addresses the unique anatomy in adults with Down syndrome that makes being active more challenging. UNLV physical therapy professor Thessa Hilgenkamp works with a patient inside the Cardiovascular … READ MORE

Brain wave-powered tech allows Canadian kids ‘trapped in their own bodies’ to play

Brain-computer interface technology allows eight-year-old Giselle Alnaser to use her brain waves to move her wheelchair and play at the Holland Bloorview Kids Rehabilitation Hospital in Toronto, Tuesday, January 9, 2024. THE CANADIAN … READ MORE

Researchers find new way to deliver treatment to infants at risk of cerebral palsy

Drug-release technology carries medication to the site of perinatal brain injury, protecting infants from harmful side-effects. U of A researchers have found a safer way to deliver critical anti-inflammatory medication to newborns at … READ MORE

The daunting child care challenges for kids with special needs

Finding high-quality, affordable child care can be especially difficult for parents of children with disabilities. File photo, John Kuntz, cleveland.com By Gretchen Cuda Kroen, cleveland.com January 3, 2024 Cleveland, Ohio — Finding … READ MORE

Study finds telehealth improved timely access to N.B. health care during the pandemic

Phone consultations increased by 122 per cent in pandemic. Nine-two per cent of primary-care providers in the study said they’d like to continue to use telehealth. Hannah McKay, Reuters / Pool Mia Urquhart, CBC News New … READ MORE

New software designs optimized, personalized treatments for movement impairments

First-of-its-kind computer-aided engineering tool could aid clinical treatment design. B.J. Fregly is a professor of mechanical engineering and bioengineering, a CPRIT Scholar in Cancer Research, and a recent Brown College magister at … READ MORE

Ontario accessibility in ‘crisis,’ says report quietly released by Ford government

Advocates say province ‘squandered’ precious time acting on report’s recommendations. The Ontario government quietly released a review last week calling the current state of accessibility in the province a … READ MORE

Early multiple sclerosis treatment may lead to less disability

Starting treatment for multiple sclerosis soon after first experiencing symptoms of the disease may slow its progression. North Vancouver resident Marilyn Lenzen, who was diagnosed with MS nearly two decades ago, hopes that everyone … READ MORE

Suffering in the shadows

Parents of medically complex children say life is a never-ending fight for help. Jordan Stead’s three-year-old daughter, Ebba, has a rare neurodevelopmental condition called CDKL5. Mark Cumby CBC. By Jessica Singer, CBC News June 3, … READ MORE

Should you have a copy of your medical record? These experts say yes

Experts say patients will feel more informed, empowered in their care. Experts say patients should have a copy of their medical records, but they acknowledge there are still many barriers to getting this information into the hands of … READ MORE

Woman with Cerebral palsy overwhelmed by outpouring of support

After returning home from yet another lengthy hospital stay, a 32-year-old with severe cerebral palsy has received over 500 letters of encouragement from across the country. Patrick Tehan/San Jose Mercury News/TNS by John Walk, … READ MORE

How families of children with disabilities can find support

Susana Ruiz sat in the doctor’s exam room in San Jose, unable to smile, open her right eye, or even take a sip of water. Susana Ruiz with her youngest son. Photo by Manuel Ruiz. By Claudia Boyd-Barrett, California Health Report … READ MORE

WHO launches first ever Patient Safety Rights Charter

WHO / Jacqueline Christensen. World Health Organization 18 April 2024 Today, WHO launched a Patient Safety Rights Charter at the Global Ministerial Summit on Patient Safety. It is the first Charter to outline patients’ rights in the … READ MORE

Montréal doctors’ breakthrough discovery about causes of cerebral palsy giving hope

Sienna Zakaria was born with cerebral palsy and a new breakthrough discovery about the causes of the disorder is giving her parents new new hope. CTV Montréal Matt Gilmour Video journalist, CTV News Montréal March 29, 2024 A … READ MORE

Canadian kids’ spinal surgery waits ‘far exceed’ recommendations: report

Severe spinal curvature painful, delays can lead to more complex surgeries with longer hospitalizations. Madison West-Pettigrew smiles in this undated photo. Madison waited a year for scoliosis surgery as the curvature in her spine … READ MORE

New research sheds light on “Runner’s Knee”

The new study finds personalized rehabilitation may be needed to effectively address chronic knee pain. Photo by Andrew Tanglao on Unsplash Anna Zarra Aldrich, University of Connecticut September 19, 2023 Neal Glaviano, assistant … READ MORE

Therapy framework reveals promise for intensive pediatric rehabilitation for children with motor disabilities

A Fralin Biomedical Research Institute study in Behavioral Sciences highlights effective therapeutic interactions and improved outcomes for children with motor disabilities. Dory Wallace, a therapist at the Fralin Medical Research … READ MORE

Study supports genetic testing for people with cerebral palsy

A Geisinger meta-analysis of recent research on the genetics of cerebral palsy (CP) provides evidence that genetic testing should be offered as the standard of care for people with the disorder, similar to current recommendations for … READ MORE

Long waits for hip and knee replacements persist in Canada

Wait times in Canada for procedures like hip and knee replacements were longer than 6 months at the beginning of the pandemic and in 2022, according to new data from the Canadian Institute for Health Information (CIHI). Healthcare … READ MORE

Principles of Ankle-Foot Orthosis Prescription in Ambulatory Bilateral Cerebral Palsy

Brittany, a patient at Shriners Hospital for Children—Chicago rides an adaptive bike with a recreation therapist. Shriners Hospital for Children, Chicago photo. Abstract Maintenance of upright posture and gait mobility is frequently … READ MORE

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