Patient-reported efficacy of the UCSF custom Pectus carinatum orthosis

Chrysta Irolla MS MSPO CPO is a recipient of the 2021 Howard R. Thranhardt Award

Irolla will present Treatment Parameters for the UCSF Pectus Carinatum Orthosis: A Pilot Study. More information about the 2021 National Assembly is available at AOPAnet.org

Irolla is the clinical manager and residency mentor at the University of California, San Francisco Orthotics and Prosthetics Center. She explored her interest in patient rehabilitation while obtaining her MS in Engineering Design from Northwestern University and subsequently decided to focus on patient care and get her MSPO from The Georgia Institute of Technology.

Figure 1. A, Anterior view of the UCSF-PCO. B, Lateral view of the UCSF-PCO. UCSF-PCO indicates custom. University of California, San Francisco, Pectus Carinatum Orthosis. Uploaded by Chrysta Reana Irolla.

Introduction

Pectus carinatum is a bony deformity of the anterior chest wall and has a strong negative impact on patient self-esteem and quality of life. During adolescence, the deformity is often flexible and can be treated with a compressive orthosis. The purpose of this study is to evaluate the compliance to and patient satisfaction with the custom University of California, San Francisco (UCSF), Pectus Carinatum Orthosis (PCO) design.

Materials and Methods

This was a cross-sectional survey of the patients who received orthotic treatment for pectus carinatum at UCSF between August 2012 and June 2018. Potential subjects were contacted and asked to complete the Pectus Carinatum Evaluation Questionnaire (PCEQ), which was administered online via Research Electronic Data Capture. The PCEQ measures compliance as well as the physical and psychosocial impact of orthotic treatment for pectus carinatum. Results were compiled and summarized using nonparametric descriptive statistics.

Results

Of the 35 consented subjects, 12 (11 male patients and 1 female patient aged 12–17 years) completed the survey. Subjects reported an average wear time of 12.7 hours per day, 5 days a week. Seven reported no symptoms, three experienced chest pain, two reported difficulty breathing, and one had back pain. Eight reported happiness with the results of their orthotic treatment.

Conclusion

Wear times reported by the subjects were comparable with those reported in other studies looking at prefabricated pectus orthoses. However, there were lower reports of pain associated with the UCSF treatment than in other studies. Further research is necessary to determine the benefit of custom fabricated versus prefabricated PCOs.

References

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Patient-Reported Efficacy of the University of California, San Francisco, Custom Pectus Carinatum Orthosis, Stauffer, Samantha MSOP; Shirley, Corin MPO, CO; Fortson, Benjamin MPO, CPO; Henry, Nicole MPO, CPO; Irolla, Chrysta MS, MSPO, CPO; Padilla, Benjamin MD. Journal of Prosthetics and Orthotics. April 2021 – Volume 33 – Issue 2 – p 96-100. doi: 10.1097/JPO.0000000000000358. Uploaded by Chrysta Reana Irolla.

Pectus Carinatum Evaluation Questionnaire (PCEQ): a novel tool to improve the follow-up in patients treated with brace compression, Pessanha I, Severo M, Correia-Pinto J, Estevão-Costa J, Henriques-Coelho T. Eur J Cardiothorac Surg. 2016 Mar;49(3):877-82. doi: 10.1093/ejcts/ezv198. Epub 2015 Jun 9. Full text, PDF