Parenting

Parents say they can’t afford their disabled children under N.L. health system

Many families don’t qualify for coverage for costly special equipment and respite care. The family of six-year-old Lauren Tucker says they struggle to pay for all the care she needs — and they’re not the only ones. … READ MORE

We should care more about caregivers

Caregivers in Canada need more support It’s time to strengthen support for the 28% of people who provide care for an ageing family member, friend or neighbour in Canada, argues an editorial in CMAJ (Canadian Medical Association … READ MORE

Baby helmet therapy tips and advice

When I learned of our baby’s craniosynostosis diagnosis, and that I wanted to push and fight for him to have the less invasive surgery, I also knew that baby helmet therapy was part of that package deal. The surgery fixed about 20% … READ MORE

How ‘tummy time’ factors into container baby syndrome – what primary care providers need to know

Some of the most commonly used devices for infants — car seats, swings, bouncy seats, strollers, carriers or any device that inhibits a young child’s chance to roll, move, wiggle and kick — pose a risk for motor skill delay, … READ MORE

No obstacle too big for this middle-school student with cerebral palsy

Katie Brennan was born about a month early, but other than that, her mother Annette thought everything was fine. Amanda Kell, left, and Katie Brennan, center, compete for “Fierce Five” in the Gaylord Gauntlet, a 5K obstacle race … READ MORE

Nonsynostotic deformational plagiocephaly: Understand, screen, and intervene

DP has a short window of opportunity for intervention while the skull bones are malleable; after age 24 months, the cranial sutures are generally fused. 0rthomerica Laura C. Steinmann RN, Samantha Elaine Struthers PhD OTR/L, Medscape … READ MORE

Plagiocephaly FAQs – National Association for Plagiocephaly

The National Association for Plagiocephaly. Below are some frequently asked questions about plagiocephaly. If your questions are not answered here, please contact The National Association for Plagiocephaly for more information. … READ MORE

CRA moves to slash ‘excessive’ fees charged by disability tax credit companies

It’s been 5 years since legislation passed to tighten rules around firms that help Canadians apply. Cathy Publicover of Eastern Passage, N.S., said she welcomes proposed regulations to limit how much companies can charge to help … READ MORE

Twin babies get helmets from Mary Free Bed

The two boys, Edgar and Vincent, have flat areas on the sides and down the middle-back of their heads, a consequence of positioning when they were in the womb. The boys landed in the severe category within a plagiocephaly and … READ MORE

Calgary infant head position and shape clinic

If your baby is diagnosed with Deformational Plagiocephaly, Brachycephaly or Scaphocephaly and is between the ages of 3 and 18 months, your pediatrician or specialist may refer you to a practitioner who specializes in providing … READ MORE

Fort McMurray program provides adapted bikes to children with disabilities

‘It was exciting to be able to actually see him use a bike.’ Blake Fielder sat patiently on his new bike while it was adjusted to fit him. Jamie Malbeuf CBC Jamie Malbeuf, CBC News Edmonton May 14, 2019 For the first … READ MORE

Edmonton mom raises awareness about condition that requires baby to get head-shaping helmet

Angie McIntosh noticed her baby boy couldn’t turn his head to the right when he was six weeks old. Dylan McIntosh also had a strange flat spot on the left side of his head. Angie McIntosh’s baby Dylan has plagiocephaly, an … READ MORE

Infant positional plagiocephaly

Cranial asymmetry occurring as a result of forces that deform skull shape in the supine position is known as deformational plagiocephaly. Orthomerica Starband Carl Cummings MD, Principal author, Canadian Paediatric Society, Community … READ MORE

South Health Campus to open pediatric emergency care space

The South Health Campus is a big step closer to opening a pediatric emergency care space because of an anonymous donation of $3.9 million. Kids covers their hands in paint and are joined by dignitaries for the announcement of a $3.9 … READ MORE

Does my infant need a helmet? Understanding positional plagiocephaly

Parents naturally start to worry if a flat spot began forming on the back of your baby’s head. It can be scary not knowing if it will go away. Since 47% of infants have some sort of flat spot, and one in 10 needing treatment, … READ MORE

Helmets do little to help moderate infant skull flattening, study finds

BMJ Helmet study — Our response. On May 1, 2014, the NY Times published an article discussing the recent British Medical Journal study that hypothesized that cranial helmets for babies don’t work to improve flat head syndrome. … READ MORE

Rehabilitation and cerebral palsy

Frequent re-evaluation of orthotic devices is important because children quickly outgrow them and can undergo skin breakdown from improper use of this equipment. Summer camp for children with cerebral palsy. CerebralPalsy.org Author: … READ MORE

Infant sleeping chairs linked to 32 deaths in US recalled in Canada

An infant sleeping chair linked to dozens of deaths in the United States has been recalled in Canada. U.S. Consumer Product Safety Commission. Fast Company Ryan Flanagan, CTV News May 15, 2019 Health Canada says four models of the … READ MORE

Natural Adventure Park returns to campus after successful pilot

Summer campers get creative, interact with nature in pop-up play area. Campers collaborate to build structures from a variety of natural materials. Danielle Chicoine, Faculty of Kinesiology Justina Contenti, University of Calgary … READ MORE

Transitions: Helping kids make the leap to adult care

In healthcare, transition refers to planning for and making the move from child to adult services. When the process isn’t managed well, young adults can fall into gaps in care and declining function, health, and quality of life. … READ MORE

Adapted Sport and Recreation Summer Camps 2019 – University of Calgary

Come discover your abilities! Explore a variety of adapted sport, recreation and leisure activities – sledge hockey, climbing, swimming, wheelchair sports, dance, gymnastics and art. Campers take part in a new adapted camp at … READ MORE

How restrictive baby equipment can hinder development

As parents, we rely on convenient places to keep babies safe and contained, but common pieces of baby equipment could be leading to flat heads and muscle strains. Plagiocephaly, the clinical name for asymmetrical flat-headedness in … READ MORE

Adolescents with cerebral palsy report similar quality of life to their able-bodied peers

“Our results are encouraging. Across 10 different areas of life, adolescents with cerebral palsy only ranked their quality of friend and peer relationships as on average lower than adolescents in the general population, … READ MORE

Girl, 3, is Orange family’s inspiration to change the world of pediatric walkers

Serena Zitnay, 3, uses her walker to get around as her older sister Emma, 5, looks on at the family home in Orange. Christian Abraham, Hearst Connecticut Media By Pam McLoughlin, New Haven Register November 21, 2018 Three-year-old … READ MORE

New research gives parents a heads-up (on plagiocephaly)

This morning, Kennedy had her 12-week scan done at STAR. I was so excited to take her, since I was pretty sure this would be the end of our time with the STARband. Kennedy has been wearing her helmet for three months – quite a long … READ MORE

Crucial for health system, many caregivers are struggling financially and emotionally

Caregivers are ‘glue that keeps the health-care system together,’ foundation says. Stephane Alexis embraces his brother Torence, left, as they are photographed in their family home near Ottawa. Stephane helps provide care … READ MORE

How does helping people affect your brain?

Study shows neurobiological effects of providing support to others. Both younger and older participants in the Intergenerational Care Project have expressed excitement and joy at being able to interact with each other. Griffith … READ MORE

Pectus carinatum bracing – FAQs for parents

Help your child wear the brace exactly as recommended by your health care provider. This will help your child get the best results from it. Bracing in pediatric patients with pectus carinatum is effective and improves quality of life. … READ MORE

Alberta law to allow unwed parents to share financial burden of disabled adult children

The proposed legislation would allow parents to apply for financial support from ex-partners. Christina Ryan reads to her daughter, Emily, who is 18 but still requires constant care due to her Down syndrome and several other medical … READ MORE

The women behind “befree zipOn” pants – on solving a design flaw for people with disabilities

Four years ago, when Nikki Puzzo haphazardly cut up a pair of her daughter Stella’s pajama pants and reconstructed them with Velcro on the sides so they could easily be taken on and off over a spica cast, she found it hard to … READ MORE

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