Health care delivery

Pandemic upends the lives of people with disabilities — and of their caregivers

When the COVID-19 pandemic hit, Stacy Ellingen, 34, of Oshkosh, Wisconsin, lost two of the three caregivers she depends on to dress, shower, eat and use the bathroom. The caregivers — both University of Wisconsin-Oshkosh students … READ MORE

I’m scared: parents of children with disability struggle to get the basics during coronavirus

COVID-19 has had a significant impact on all Australians, but there are very good reasons why the impact might be more keenly felt by people with disability and their carers. More than isolated: The experience of children and young … READ MORE

Do you have a right to protest? The coronavirus impact on freedom of assembly

A group gathers to protest against social isolation rules of the COVID-19 pandemic in Edmonton AB on April 29, 2020. The Canadian Press, Jason Franson Caroline Hodes, Associate Professor Constitutional Law, University of Lethbridge, … READ MORE

What you need to know about COVID-19 in Alberta – May 2020 Archive

AHS phone line staffed by occupational therapists and physiotherapists. A new advice line set up to help Albertans with physical disabilities and injuries connect with rehabilitation advice during the pandemic is believed to be the … READ MORE

Cases of children with rare inflammatory syndrome spike in Italy and France

Doctors in France and northern Italy, one of the areas hardest hit by the new coronavirus, have reported spikes in cases of a rare inflammatory syndrome in young children that appears similar to one reported in the United States, … READ MORE

Calgary mother worries some disabled Albertans are being overlooked during pandemic

Alberta’s single site restriction doesn’t apply to health-care aides working in people’s homes. Laverne Bissky and her husband made the decision years ago to take care of their 24-year-old daughter Kasenya Bissky, … READ MORE

Kids with disabilities face health risks and marginalization under COVID-19

COVID-19 has been disruptive to all families, a McMaster University professor says, but the effects of school closures, medical equipment shortages and social distancing are further amplified for families of children with … READ MORE

Remote learning continues in NJ but students with disabilities still falling behind

Samantha Wagensommer has been helping to care for and teach her little brother, Dean, who is a special education high school student, since the coronavirus outbreak forced schools to move online. By Amanda Hoover, NJ Advance Media For … READ MORE

Disabled people marginalised by paperwork and programmes which aim to help them

Disabled people face being marginalised by the very programmes that are designed to help them. Research shows disabled people face being marginalized by the very programs that are designed to help them. Projects and welfare systems … READ MORE

In Canada, Albertans wary of ‘big brother’ with use of COVID-19 digital-tracing app

More users needed: Lessons from Alberta’s coronavirus contact tracing app. Alberta released its contact tracing app, ABTraceTogether, last week. But early uptake figures and a key design quirk show how challenging it will be for … READ MORE

Staff restrictions, lack of PPE endangering Albertans with disabilities

Help accessing personal protective equipment is on the way, says Alberta Health Services. ‘We feel forgotten’: Disability community overlooked during COVID-19, families say. Government of Alberta says its working with … READ MORE

What you need to know about COVID-19 in Alberta – April 2020 Archive

Beltline urges city to make walking ‘safe and comfortable’ with physical distancing. Beltline residents say walking with physical distancing at peak times is difficult. Helen Pike CBC CBC News Calgary April 30, 2020 ▽ … READ MORE

Malcolm Gladwell has no doubt science will lead us out of pandemic, but worries about ‘the human part’

COVID-19 could be ‘shock to the system’ that leads to social change: author. Author Malcom Gladwell says we don’t all have ‘the same stake’ in the pandemic, and it’s important we recognize the vulnerable … READ MORE

Injunction stops hundreds of young adults from losing benefits as they transition from care

Young mother challenged amendment set to take effect April 1. A.C. has been granted a court injunction delaying a change in legislation that would have lowered the age of eligibility for the SFAA program to 22. Trevor Wilson CBC … READ MORE

Home schooling during pandemic a daunting challenge for families of kids with disabilities

Schools need a closer connection to children with special needs during closures. The Richmond family, left to right: Hayley, Jake, Phil and Harry. Jake and Harry have a rare genetic condition with a variety of complex special needs. … READ MORE

Funding flexibility offered for Alberta children with special needs during COVID-19

Routine changes have been especially challenging for families of children with special needs. Angela Bladon said it’s been a struggle to provide the proper supports to her two special needs children since in-school classes were … READ MORE

What you need to know about COVID-19 in Alberta – March 2020 Archive

A man uses a hand sanitizer station at the Eaton Centre amid coronavirus fears spreading in Toronto on Saturday, March 14, 2020. Carlos Osorio, Canadian Press CBC News Calgary March 31, 2020 ▽ Table of Contents Keep an eye on the … READ MORE

It can be very taxing on families: New study reflects unmet needs of Canadian caregivers

1 in 4 Canadians provide care to a family member or friend – StatsCan report. Of those surveyed by Statistics Canada for a report released in January 2020, nearly 70 per cent of caregivers who had received some type of support … READ MORE

New smartphone app gives Albertans access to virtual health care during COVID-19 pandemic

Babylon mobile app allows you to check symptoms, consult with doctors. Using Babylon, an app developed by Telus Health, patients can have one-to-one video consultations with doctors, with the cost of those virtual visits covered by … READ MORE

COVID-19: The latest guidance for Canadians on travel, quarantines and what to do if you have symptoms

‘We’re in this really unstable phase of the pandemic,’ Canadian infectious disease expert says. As COVID-19 cases continue to rise in Canada, experts are trying to slow the spread and prevent the health-care system … READ MORE

‘It scares me:’ Adults with disabilities still waiting decades for supportive housing

Recent report calls wait list ‘deeply disturbing.’ LeeAnn Poisson, left, sitting beside her daughters Abbey, centre, and Emily, right. Jason Viau CBC Jason Viau, CBC News Windsor August 12, 2019 Parents of adults with … READ MORE

Youth Transitions to Adulthood Conference – May 6-7, 2020

Learn how to transition from youth to adulthood care successfully. University of Calgary researcher Susan Samuel is leading the Transition Navigator Trial to improve the transition of young people from paediatric to adult health care. … READ MORE

Disabled First Nation woman needs all-terrain stroller to get around on reserve

‘She had the biggest smile I’ve ever seen on her.’ Thanks to the success of an online fundraiser, Dee Dee House’s family will be purchasing her the all-terrain stroller she needs to venture outside of her house … READ MORE

Wanted: Accessible homes for Ontarians of all ages and abilities

Accessible homes for Ontarians of all ages and abilities Nearly 2 million Ontarians live with some form of disability that affects their mobility, vision, or hearing — and the country is aging at a faster rate than ever before. That’s why experts are saying we need to embrace universal design

Nearly 2 million Ontarians live with some form of disability that affects their mobility, vision, or hearing — and the country is aging at a faster rate than ever before. That’s why experts are saying we need to embrace universal … READ MORE

Alternate payment model is saving province millions at two Alberta clinics

HQCA studied 10 years’ worth of data at two clinics that offer team-based model of care. A new report by the Health Quality Council of Alberta reveals two Alberta primary care clinics — using an alternative funding model for … READ MORE

Alberta nurses have ‘grave concerns’ with rollout of Connect Care

A new electronic system that will eventually be used across all Alberta Health Services facilities is scheduled to launch at some Edmonton locations at 4 a.m. Sunday. WATCH: Some Edmonton health facilities are bracing for potential … READ MORE

Parents say they can’t afford their disabled children under N.L. health system

Many families don’t qualify for coverage for costly special equipment and respite care. The family of six-year-old Lauren Tucker says they struggle to pay for all the care she needs — and they’re not the only ones. … READ MORE

An example of why patients need to control all their health and social care records

This blog is suffused with conflict of interest, but I hope that you’ll agree that it’s about improving the NHS rather than making money for me. Richard Smith. BMJ Richard Smith, BMJ Opinion July 1, 2019 Without being paid I have … READ MORE

We should care more about caregivers

Caregivers in Canada need more support It’s time to strengthen support for the 28% of people who provide care for an ageing family member, friend or neighbour in Canada, argues an editorial in CMAJ (Canadian Medical Association … READ MORE

Apple opens iPhone EHR features to all healthcare organizations

Apple has announced that it will allow any US healthcare organization with a compatible electronic health record (EHR) to register with its mobile Health Records feature, according to a tweet from Ricky Bloomfield, MD, Apple’s … READ MORE

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